Health Care

Parents of terminally ill baby Charlie Gard hope to bring him home

Parents of terminally ill baby Charlie Gard hope to bring him home”

The little boy's mother Connie Yates was back in court on Tuesday a day after she and partner Chris Gard abandoned legal action over treatment for the baby.

Lawyers representing Chris Gard and Connie Yates said the couple wanted to spend the "maximum amount of time they have left with Charlie".

The couple's barrister Grant Armstrong countered by asking why a portable ventilator - which would have theoretically been used to take Charlie to the U.S. - can not be used. They requested in April that their son be allowed to leave Great Ormond Street Hospital, which they blame for delays that prevented them from prolonging his life through experimental therapy in NY.

On Tuesday a spokesman for the hospital said experimental therapy "could have been an opportunity" to help Charlie but it was too late.

"We struggle with the difficulties the hospital is placing in the way of the parents having a. short period of time before the final act in Charlie's short life", Armstrong told the court. "It must be provided in a specialist setting by specialists", the document said.

In a statement he read outside the court July 24, Chris Gard said, "This is one of the hardest things that we will ever have to say, and we are about to do the hardest thing that we'll ever have to do, which is to let our lovely little Charlie go".

The plight of 11-month-old Charlie, who suffers from an extremely rare genetic condition causing progressive brain damage and muscle weakness, has been at the centre of a bitter dispute between his parents and Great Ormond Street Hospital. They said life-support treatment should stop.

"Charlie is a child who requires highly specialised treatment".

Mr Justice Francis said: "These are issues which cry out for settlement".

The legal battle, which began in early March, saw three British courts rule against the parents before the European Court of Human Rights announced June 27 it would not intervene in the case, BBC News reported.

But the couple had recently returned to court, saying they had new evidence and they asked Mr Justice Francis to change his mind.

On Monday, Chris Gard and Yates gave up their fight to take Charlie to the USA to be treated by Dr. Michio Hirano, a professor of neurology at the Columbia University Medical Center in NY.



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